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New to MAC and considering treatments options: What did you do?
MAC & Bronchiectasis | Last Active: Nov 19, 2023 | Replies (190)Comment receiving replies
Hi Sue-
I tried to join Lung Matters. I was accepted and welcomed. I asked two questions. One was, "Has anyone ever heard of omadacycline?" and the other was "What strength saline does everyone use?" They immediately deleted me from the group. I am new to this journey and just trying to figure it all out. It was extremely disconcerting.
I have a Pulm who was ID first and then specialized in PULM. He did a fellowship at NJH. He works directly with NJH physicians.
I am happy to have found this support group at Mayo. Everyone appears to be very supportive and not judgmental.
I, too, was told daily sterilization was not necessary.
Thank you!
Replies to "Hi Sue- I tried to join Lung Matters. I was accepted and welcomed. I asked two..."
Hello, I’ve been on omadacycline since June and I nebulize3% saline
Sometimes, rules and regulations get out of hand and we have to decide if we want to associate with that type of set up. I like this blog, as there is never judgement or harshness.......We all have enough to carry on our shoulders having lung issues...and a little kindness, understanding and acceptance goes a long, long way. Welcome to the Mayo blog. They have taught me EVERYTHING I know.
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Hmmm...that doesn't sound very welcoming or helpful. Welcome to Mayo Connect. I promise you won't be deleted or shamed here - we treat every member with respect, and accept that each person has their own journey with MAC & Bronchiectasis - which may be very different from mine or yours. We try to offer help and opinions based in science and research.
Would you feel comfortable asking your questions here?
Sue