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How do you diagnose myasthenia gravis?

Autoimmune Diseases | Last Active: Feb 28 7:26am | Replies (36)

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@brighterday

I am an MG newby (very recently diagnosed although I’ve had symptoms for years) and would love to learn of reputable resources for information. My neurologist is not good at providing education about this disease. I have so many questions and feel like I’m on my own. Information found online is sometimes conflicting, especially regarding medications I should avoid. Any direction you can provide will be greatly appreciated!

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Replies to "I am an MG newby (very recently diagnosed although I’ve had symptoms for years) and would..."

I’ve had MG for 50 years. I don’t know of any medications you need to avoid. Never came across any that worsened my symptoms. For me the 2 crucial positive things were having a Thymectomy early on and taking Mestinon, as much as I felt I needed. In daily life, it’s tough I know but try to avoid extremes - eg of emotion (eg anxiety), temperature (being too hot or cold), food (too much/too little). These seem to exacerbate symptoms. I wish you luck. It’s a drag isn’t it.