I have just started Actemra in conjunction with 6mg of prednisone for GCA. I previously had PMR about 8 years ago and was declared OK after about 2 years on prednisone. I had been warned about GCA but forgot about it until last year 2022 when I suddenly developed jaw claudication and then double vision and severe pain in right eye. So now 15 months later on my journey with GCA.
My rheumatologist went for Actemra because my CRP AND ESR keep spiking. Early days and hoping for stabilisation of "bloods".