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Finding a specialist who provides individualized treatment
Osteoporosis & Bone Health | Last Active: May 13 11:00am | Replies (11)Comment receiving replies
I'm 2 years post menopausal, however I've almost certainly had undiagnosed osteoporosis for several years.
I've had hip pain off and on for about 10 years. It would come and go, so I never saw a doctor about it. I wish that I had, because now I know that can be one of the signs of osteoporosis.
I have epilepsy with rare tonic clonic seizures. Three years ago during one such seizure, I suffered a vertebral compression fracture. Even though I was 50 years old and in perimenopause at the time, no one (ER doctors, GP, Neurologist) seemed to know the cause. I burned through 3 doctors, and a physio before one of them considered the possiblilty of osteoporosis. Even then, I had to push for a DEXA scan.
When I was finally diagnosed 11 months ago, my t-scores were very low---3.2 femoral neck and -3.7 lumbar.
I also had a CMP which showed that my vitamin D levels were extremely low despite supplementing for several years with a high quality tincture of 5000 IU per day.
In my estimation, all of these factors comined suggest that my bone loss is due to in part by something more than aging. Side note: AEDs (anti-epileptic drugs) can cause bone loss, however the one that I take supposedly does not.
Recently, I asked my Osteopath to run more tests to explore the cause of the vit. D deficiancy. His reply, and this is a quote, was, "That would take a lot of work on my part."
It's time to find a new doctor.
Replies to "I'm 2 years post menopausal, however I've almost certainly had undiagnosed osteoporosis for several years. I've..."
I need to make a correction and an update about the doctor I refered to in my comment which I'm now replying to.
Correction: I said in my comment that the doctor I was refering to was an Osteopath. That was an error. He's an Orthopedic Surgeon.
Update: He's not only made a huge shift in his thinking, he's excited to learn more about treating osteoporosis, and to work with me to reverse my condition.
Recently, he joined a professional OP organization, and is even talking with our local clinic administration about the possibility of putting together an OP conference.
I now feel incredibly fortunate to have him on my treatment team.
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I am also on anti seizure meds that supposedly do not contribute to my osteoporosis. I have taken meds for 45 years and suspect that any long-term meds may contribute to other problems. I have not followed through with any other Drs . My bone density improved 4% with Evenity. Hope you receive some answers and better care.