Neuroendocrine breast cancer

Posted by trixie1313 @trixie1313, Feb 18, 2019

I have just learned that in addition to invasive ductal breast cancer that I also have neuroendocrine cancer which I am told is aggressive. I have already had two lumpectomies with TC chemotherapy and 30 radiation treatments. Am now told that I will require chemo consisting of cisplatin and etoposide with 4 cycles 3 weeks apart and each cycle with 3 days of infusion. This will be followed by 5+ years of aromatase HRT PLUS palbociclib (Ibrance) med. I'm told this is a rare form of breast cancer. Anyone out there experiencing this?

Interested in more discussions like this? Go to the Breast Cancer Support Group.

Colleen Young, Connect Director | @colleenyoung | Nov 12, 2023

In reply to @hatidzabaj "I just got diagnosed with invasive ductal carcinoma and I am lost. Any suggestions?" + (show)

Hi @hatidzabaj, I’d like to add my welcome - albeit to a group you never wanted to join. I agree with @dp77827 that you will find helpful, supportive members here who have walked this path before you and are ready to offer a virtual hand.

It sounds like you only recently received your diagnosis. Have you met with your cancer team to discuss treatment options? How are you doing?