I have had long COVID for almost 2 years and feel like there’s no end in sight. I’ve been in research trials and to several specialists/different hospitals. I believe there are caring providers that want to help but they get frustrated that they don’t understand what’s going on or how to help and that gets communicated as brushing me off/or like they don’t believe in it. I won’t go through all of my symptoms now but the past few months a new symptom emerged. I felt very full/pain in my ears, neck swollen like I felt suffocated constantly. I had a biopsy in my neck which was benign. Long story short a massage therapist started lymphatic drainage. If you get someone trained well in this it makes a world of difference. I also notice the biggest difference if I eat nearly 100% “clean” - no processed foods, hardly any dairy, no white bread/products, less red meat, absolutely nothing deep fried, etc. Look up “anti-inflammatory diet” and if that is followed strictly, that always affects how much lymphatic fluid builds up. The days I eat poorly my neck is so swollen with lymph that I feel like I can’t breath and my throat is shutting. I also started red light therapy and infrared heat (yoga). I’ve noticed these types of workouts in infrared heat don’t knock me down like anything else (even walking). I still am short of breath doing stairs, walking even short distances, etc. but for some reason can do yoga in infrared heat. Hope this helps.