I too suffer from central pain syndrome .I'm 39yrs old. Mine started after a strange viral or bacterial sickness that my while family suffered from that was unexplainable by doctors from various establishments .
I understand your daughters pain .I too burn all over my body,the pain is so bad it makes me sick .and also I seem to get alot of bacterial and fungal infections now .nobody seem to understand the pain .my doctor tells me to just not think about it and it will go alway! My pain specialist seems to give me little to no pain medicine that actually works (I found the endone is the only thing that helps and it is only really given to cancer patients whom I do feel very bad for ,but there is more than just this that suffer from pain of this magnitude) .I have 5 children whom I cannot even hug me as my pain is so extreme I cannot think ,I cannot eat I cannot do anything to alleviate my pain execpt lay there burning praying to God to make it stop or for me to hurry up and die just to stop the pain ,cramping all over and extreme aching of all my muscles and joints .I would not wish this on my worse enemy .I would rather give birth a million time over as it is less painful than this !!