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Psychological effects of living with neuropathy

Neuropathy | Last Active: Dec 1, 2023 | Replies (106)

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@penn

Hello, domiha,
I had a Laminectomy 2008, took S-1 L-2 L-3 L-4 L-5 NO FUSION!!!!!!!!! WENT DOWN HILL COULD DRIVE ANYMORE!!!!! THEN WENT TO JOHNS HOPKINS, BIG MISTAKE, PAIN MANAGEMENT DID A "NERVE BLOCK" DID NOT WAIT UNTIL SEDATION KICKED IN, I FELT HIM HIT A NERVE THAT I CAN NOT EXPLAIN HOW PAIN FULL THAT WAS, DID NOT EXPECT IT I SCREAMED!! OUT! DR. SAID, "OH THATS THE NERVE!
NOW I HAVE A PAIN PUMP THAT HELPS THE SPINE BUT DOES NOT HELP SMALL FIBER NEUROPATHY! I AM VERY DEPRESSED, I'M OUTGOING AND MY HOME IS MY JAIL. HUSBAND AND I HAVE NO FAMILY. I DON'T TELL OTHERS HOW BAD I'M BECAUSE PEOPLE HAVE THEIR OWN LIVES AND.........! NOV. 17 GOING FOR A PORT. HARD TO TAKE BLOOD NOW AND INFUSIONS.MY HUSBAND DOESN'T GET HOW BAD THIS IS. MAYBE BECAUSE I FORCE MYSELF TO COOK, LAUNDRY, STAIRS, ETC. AND I HURT MYSELF IN THE END. I REFUSE TO BABY MYSELF. DUE TO CONSTIPATION PAINFUL SITTING. THANK YOU FOR LISTENING. DO PHONE THERAPY WITH A PSY.

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Replies to "Hello, domiha, I had a Laminectomy 2008, took S-1 L-2 L-3 L-4 L-5 NO FUSION!!!!!!!!! WENT..."

Hi, @penn. So sorry to hear of all you have suffered through. I had the same laminectomy, L2 to S1, no fusion, just like you. Thankfully, the surgery helped the pain in legs that was preventing me from walking. The surgeon has said that IF he were to go back in and fuse L4, L5, S1 that "MIGHT" relieve the neuropathy in my feet. But there is no guarantee and I'm not ready to jump back up on the OR table. I do see a therapist regularly, and I take meds for depression and anxiety that have been with me all my life. Bette Davis was right when she said "getting old is not for sissies." Take good care, and I hope the port will be successful and a help to you. Mike