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Yes I have gone through the same scenario, tried to get off, then tried just to cut back the dosage and neither worked. Severe GERD returned. Quality of life now is more important. Been on full dosage 2 years with no side effects so far. My Mom was on for ten years with no effects. Short of surgery, which has a high failure rate, and some are still on PPIs after surgery, all we can do is hope for the best.
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Replies to "Yes I have gone through the same scenario, tried to get off, then tried just to..."
What is your dosage than you mention as "full dosage"? I have osteoporosis and have been on a PPI for two years, low dose of 20mg. I've tried to slowly wean off with no success. My gastro Dr said this dose would not affect my osteoporosis much, but I won't know until I get my next DEXA scan in a few months.
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A good thing to have checked if on long term use of ppi is bone density. I have been on ppi’s for more than 25 years and had breakage in my foot that not heal. An xray showed osteoporosis.