← Return to Just diagnosed with invasive lobular carcinoma (ILC): Any advice?

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@lissao

Any info or advise would be appreciated!

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Hi! Sending hugs-I was diagnosed a year ago and felt very lucky to have had a radiologist pick it up in a screening mammo. After a diagnostic mammo and biopsy via ultrasound I had an MRI which is recommended with lobular and especially if you have breast dense breast which I still have at 57yrs. The surgeon will walk you thru options and I decided on a lumpectomy! Please keep us posted and don’t get too ahead of yourself until you have a plan. Once your cancer is studied in pathology you will learn so much more which will dictate your treatment. Lobular is they say tricky as the cancer cells form more if a line vs cluster/tumor in the more common ductal. Perhaps you have a cancer center near you? Hang in! Xo

I was diagnosed with invasive lobular ancer in 2021. Waiting for all the testing to be done is torturous! I was at a large medical center in Colorado where the testing was done quickly (but felt like forever). Following the mammogram and ultrasound, I also had a Body MRI and Bone MRI. I thought those were standard test and they might be for invasive lobular as it is a tricky cancer to dx.
So much depends of the "driving force" of the cancer: ER, PR and/or HER2 + or-. That will determine your treatment.
I wish you well and stay connected.

I looked mine up again and I wrote dcis but it was the invasive lobular. My tumor was a 5cm, and I was not large breasted, so no lumpectomy for me. Not likely after my breast surgeon sent me for a mammogram and an MRI.
I tried not to focus and kept my mind on day-to-day living. Like maggieb892 I too had a body scan and a bone scan and a CT scan. No other cancer noted. But genetics gave me Brca2. Then, my surgery changed my HER2- to Her2+.
The tumor itself had Her2+. I have been at the City of Hope in Duarte. Research hospital. lissao....not sure where you are at, but i hope at a place like mine that will thoroughly look at your body systems before they make a diagnosis. A plan. My friend is being treated at MD Anderson. Today she told me Herceptin is helping keep her stable.
I love what the others have posted. Keep a journal. Post on here, so you know you are not alone.