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Non-Epileptic Seizures or psychogenic non epileptic seizures (PNES)

Epilepsy & Seizures | Last Active: Aug 7 5:35am | Replies (34)
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@kirchoff79

I have these episodes, usually happens in the evening and I call them " Possession like" cause I can't talk due to tongue, stop breathing, and my arms and legs each do something different .. I convulse sometimes, fully aware and I also lose my bladder when I stop breathing.. I have a neurologist appointment this month and hopefully get some answers. But an ER doctor treated me like a junkie and I never asked for anything but to please make it stop. My Gabapentin prescription got suspended and I don't know why. ER staff put me in a dark room and shut the door. I was screaming for help cause I had stopped breathing more than a few times.
I almost lost my cool. I didn't know if this Neuro Dr would be same as ER doctor..
I didn't know if people can have episodes like seizure..
Sorry I'm rambling but I would appreciate any information about PNES. Is it possible that I am having a severe, severe form of anxiety?

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Replies to "I have these episodes, usually happens in the evening and I call them " Possession like"..."
donnahanford933 | @donnahanford933 | Jun 21 8:34am

@kirchoff79
I’m afraid I don’t have any info re your symptoms though my son’s PNES symptoms don’t resemble any of the short videos I’ve seen on YouTube on PNES. I’m indicating that there’s a wide range of symptoms attributed to PNES. AMy son was diagnosed by Stanford 2 years ago.
I do want to emphasize with your horrendous experience at the ER. How inhumane that they treated you like this. I hope that you complain about how you were treated so as to prevent this from happening to others. I do hope that you got some help from your neurologist 💕 I myself have a diagnosis of Fibromyalgia, an autoimmune disorder that typically has no visible symptoms in the early stages. The mistreatment that I have struggled with for years was so disheartening and kept me struggling not to feel crazy. These struggles left me with no self-confidencewith which to complain about my treatment. I was variously labeled as a drug-seeker and/or drug addict when all I wanted was relief FPM the then undiagnosed migraines and a treatment plan!
I wish you success in your search for a diagnosis and treatment 💕

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