@justanotherpt, Many of us have likely experienced something similar. With the increase in specialized medicine, more targeted therapies, etc. treatment has become more complex. I have the ALK mutation, and my local oncologist is very good and I respect him as a general oncologist, but he's not an expert in ALK. After a new nodule was found (which has turned out to be benign, thankfully), I did request a referral to a thoracic oncologist that has other ALK patients. I know I'm fortunate to have access to great care and these experts when I need them.
Find care that you are confident and comfortable with, it makes such a difference.