Yes, I am. Every night, just as I am about to drop of to sleep, I get a heart palpitation and then my left ear starts ringing, and my left foot goes numb. It all happens simultaneously. The tinnitus can get very loud and high pitched and has been pulsatile. There is a feeling of pain and pressure in my left ear. I have to urinate and it cycles all night waking me up at intervals and having to urinate repetitively (in a bad attack). My throat can get hoarse and sore and my nose runs. My face turns bright red. When it was really bad I would wake up sweating between 3-5AM every morning. I have had episodes of sleep apnea, muscle twitching. There is a constant sense of burning and irritation in my left ear. When I wake up my face is bright red and I get outbreaks of rosacea.

I am seeing a neurologist at Barrow and I will likely get in to dysautonomia testing. In my case, I can get the same symptoms during the day if I eat foods with histamine. It also gets worse at night if I have histamine attacks during the day. I have been to multiple doctors and specialist and Barrow is the only place where I was taken seriously.

Beverly