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I can’t cope while my husband is dying

Caregivers: Dementia | Last Active: Nov 13, 2023 | Replies (22)

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@bayviewgal

@slysi I am no longer a practicing catholic but i whole heartedly believe in what you are saying about how God has given us the ability to handle the situation of taking care of a loved one during this very difficult time of our lives. I keep asking WHY ME also, and i figure it's because I CAN do it and HE knows it also. So i just do my best....as hard as it is.
My husband and I are young....62 and 58. He was diagnosed 2 years ago and it's been a rough journey...especially since his aphasia has progressed faster than I thought it would. He has a tough time expressing himself in ways that I can understand but somehow we get thru it. For better or worse and in sickness and in health has really hit home but I wouldn't trade the love of my life for anything. And yes, I am blessed to help him also!
Prayers and hugs to both of you

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Replies to "@slysi I am no longer a practicing catholic but i whole heartedly believe in what you..."

Well said ! Being a caregiver is a very true sign of TRUE love 💕 ! There is no other reason a person would put themselves through that task ! A lot of people will say that “ we’re here for you,if you need help “ sadly that statement is just someone blowing smoke. One of the hardest parts of caregiving is keeping your Patience ! That can be really a test at times! GOD bless you !

I’m so sorry to hear you’re going through this when you’re so young. Prayers for both of you.

I totally agree with you. Do your best & yes, it is hard. The way I figure it is that this is what I signed up for when we married. And, in sickness & in health really does hit home. When we were married, my uncle / God father who officiated at our wedding told us during pre-marital counseling that marriage is a 100 / 100 percent proposition, not 50 / 50. He said that sometimes both partners can give 100 percent, others not so much. Sometimes one partner have to give 150 percent while the other can only give 50 percent in the case of illness, accident, work commitments, etc. Now that my husband has Lewy Body Dementia with moderately severe decline & multiple symptoms 6 years after his first symptom (unidentified at the time) & 3 1/2 years since diagnosis, I too would not trade him for anything. As hard & frustrating caregiving is, I too feel blessed to help him!

It is nice to hear this from another caregiver & to know we are not alone in this! Thank God for this forum to connect with each other.

Take care. I think about my fellow caregivers out there every day.