Financial discussions/tips concerning expensive treatment

Posted by ans @ans, Nov 6, 2023

The last 2 days have seen some pertinent posts in regard to how and what to do to secure help for the expensive treatments/ the shots Forteo- Tymlos-Evenity. I am nearing a time of actually pulling the trigger on potentially taking Forteo. though I suppose Tymlos could be in the mix as well. This is my situation. I am currently with a commercial insurance company , Highmark, formerly and still connected to Blue Shield of NY. I am 66 and have got Medicare Part A, but not B. My husband is still working and will be for the foreseeable future ,unless something unforeseen occurs. In January of this year I called my commercial insurance company and was told at the time that it would cost me $ 1,989.40 per month under my existing plan- which is a high deductible plan. Then I contacted Forteo.com and went to savings and support and was told that I could pay $4.00 per month with a coupon up to 9,000 annually, which would be about 4 1/2 months ,leaving the remaining 8 months , which would cost me $17,904.00. That could be repeated for the second year using the $4 coupon for that time up to $9,000 ,again. Because the cost is so high I brought that up to my endo as I feel like cost does factor in one's decision. His response was," I don't want
you to be concerned with that as part of your decision making process.." I was perplexed how he could say that, but because I wasn't planning to do anything right then I let it go. Then on a follow up endo appt , with different dr, as my original one was a Fellow and had left the hospital to move on . Again, when I brought up the cost she said , "Don't worry, once you decide you are going to start treatment we have a person here that works with that end of things." As I look to potentially starting treatment after Christmas , and knowing that changes of insurance and all are abound till Dev 7th , wondering if I should possibly be signing up for Part B, or not? We will still be continuing our family plan as our youngest is 22 , and I believe we can carry her till she's 26.Not sure where and how to spend my energies in figuring this out OR to just let it fly with the response from the endo and trust they'll come up with something. And does, in that situation, essentially come down to what your income is ??
Any and all information is wanted!! THANKS SO MUCH for reading this to the end as I think there are lots of people out here that are grappling with the finance dilemma!!! .

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@windyshores

I have a Medicare Advantage Plan through BC/BS but Evenity is paid for by Medicare part B because it is given in the office. Charge to me is 80% of the cost until I hit "catastrophic," and I am close! I'll let you all know what happens in the donut hole, where I currently am!

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Hi Windy. Now I am really confused. The only terms like "catastrophic" and "donut hole" I know about suggest payment for a prescription medication under your Part D coverage, not as a Part B outpatient medical procedure. How certain are you it is being treated under Part B rather than as a Part D drug?

When I received a Prolia injection in my doctor's office, it was processed under Part D. When I received a Prolia injection at an infusion center, it was processed as Part B medical service.

Does anyone else feel we are living in a Medicare Alice In Wonderland situation?

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@rjd

Hi Windy. Now I am really confused. The only terms like "catastrophic" and "donut hole" I know about suggest payment for a prescription medication under your Part D coverage, not as a Part B outpatient medical procedure. How certain are you it is being treated under Part B rather than as a Part D drug?

When I received a Prolia injection in my doctor's office, it was processed under Part D. When I received a Prolia injection at an infusion center, it was processed as Part B medical service.

Does anyone else feel we are living in a Medicare Alice In Wonderland situation?

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I was asked to provide a link for the Medicare Rights Center. Here it is. https://www.medicarerights.org/ They do offer counseling and advocacy to individuals but the demand for those services greatly exceeds their staffing capability.

I am much more comfortable with information from this organization than what is provided by insurance agents trying to help you decide about Medicare options. I cannot shake my concern about an agent's commission based income.

I was embarrassingly remiss in failing to provide a POTENTIALLY excellent source of individual counseling about Medicare. Each state receives federal money to set up and operate a SHIP office (State Health Insurance Assistance Program.) Link is https://www.shiphelp.org/ to find contact info about your state's program.

Why did I emphasize the word 'potentially?' Because the staffing is by volunteers who receive training. Some state SHIP offices undoubtedly do a good job. Others perhaps not so much.

My sense is that in a state where there is a general interest in consumer protection, the volunteers in SHIP offices are likely better trained and supported. I referred a friend in Illinois to the state SHIP office and she received excellent counseling assistance about a very thorny situation. On the other hand, I presently reside in the state of Texas and would be shocked to receive any decent counseling.

Nonetheless, SHIP is likely better than nothing and folks with Medicare questions about coverage and payment should consider giving it a try. And if you do, would you be so kind as to report back to this forum on your experience?

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@rjd

This forum really needs someone very knowledgeable about Medicare to step in and try to make sense about all this in a more generally helpful way. There seems to be too many variables from one person to another that makes each individual situation unique and also there seems to be quite a bit of simple misinformation.

For example, Medicare Part B pays 80% of the eligible amount (after annual deductible) and you or someone on your behalf pays the other 20%. Please consult your friend Mr. Google which will lead you to the authoritative HHS info.

IF you do not pay that other 20% then you have either a supplemental plan (private insurance or employee retirement plan) or another governmental program that does pay or a pharma program. The other governmental programs are state-specific and usually income-dependent....hence creating much of the variation about what and how much is covered. The pharma programs appear to be here today and gone tomorrow.

IF you go to an infusion center to receive your osteo treatment, there is a rather complicated formula for whether Medicare considers this a Part B benefit or whether the treatment is covered under your drug plan.....I do not recall all the specifics but one of the factors I do remember about Part B eligibility is whether you have had a previous fracture.

Medicare Advantage is required to cover the same medical benefits as original Medicare. How you pay for those medical benefits is different.

Medical providers are the absolute worst source of info about the financial picture of medical care. Inasmuch as they all seem to have a similarly vacuous response, I suspect there may be a course at med school that teaches a practitioner what to say when a patient brings this up as a consideration.

If I had the time at present, I would contact the Medicare Rights Center. In my opinion, they have the most reliable info about Medicare coverage and cost. Perhaps someone here could convince a staff member at that Center to be assigned to this forum to help sort out all the coverage and cost questions that come up. I have no available time to do this until after the new year.

On the bright side of those receiving Prolia treatment, the patent is set to expire in early 2025 so there may then be available a generic like what is available for Fosomax and Bonita.

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rjd,
I agree that we need a Medicare/insurance expert to advise us. That would be great. The Medicare rights website is very helpful.
AARP has a website that addresses all of it.
As far as receiving Evenity at an infusion center, that’s what I am currently doing. My Part B covers it at 100% and I have not had a fracture.
Also, the Advantage plans are required to cover what Traditional Medicare would cover, but not necessarily at the same amount. Where Traditional Medicare would cover at 100%, an Advantage plan might cover at 50% or 75%.
I live in a poor state. Maybe the poorest in the country. As a social worker for 45 years, I am an advocate for the financially disadvantaged. In my state, low income seniors on Medicare also qualify for Medicaid. Medicaid differs from state to state. The Medicare/Medicaid combination is the best coverage anyone could have. These beneficiaries are completely covered and need no other insurance. In my city, in the poorest areas, I see billboards advertising Advantage plans with this message:
“Hey! If you have both Medicaid and Medicare,_________ Advantage plan can make your benefits even better!”
False. These beneficiaries are giving ip 100% coverage to venture into the Great Unknown of Insurance.

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@susanfalcon52

rjd,
I agree that we need a Medicare/insurance expert to advise us. That would be great. The Medicare rights website is very helpful.
AARP has a website that addresses all of it.
As far as receiving Evenity at an infusion center, that’s what I am currently doing. My Part B covers it at 100% and I have not had a fracture.
Also, the Advantage plans are required to cover what Traditional Medicare would cover, but not necessarily at the same amount. Where Traditional Medicare would cover at 100%, an Advantage plan might cover at 50% or 75%.
I live in a poor state. Maybe the poorest in the country. As a social worker for 45 years, I am an advocate for the financially disadvantaged. In my state, low income seniors on Medicare also qualify for Medicaid. Medicaid differs from state to state. The Medicare/Medicaid combination is the best coverage anyone could have. These beneficiaries are completely covered and need no other insurance. In my city, in the poorest areas, I see billboards advertising Advantage plans with this message:
“Hey! If you have both Medicaid and Medicare,_________ Advantage plan can make your benefits even better!”
False. These beneficiaries are giving ip 100% coverage to venture into the Great Unknown of Insurance.

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I was unaware that a medical benefit under Medicare Part B could possibly be covered at 100% by Medicare alone except some preventative care. Are there other examples you might know about? Here is a link to a chart issued by Medicare.gov about costs. https://www.medicare.gov/basics/costs/medicare-costs

Do you have any examples about a benefit covered 100% by Medicare that is covered at less (50-----75%) by an Advantage plan?

Agree that Medicare/Medicaid is probably the best for cost but you have to be very low-income and with few assets to qualify for Medicaid in most states.

Are you saying if you sign up for an Advantage plan (there are 'no premium' Advantage plans that function like an HMO) then you are ineligible for Medicaid?

I do not know how to respond about receiving an injection at an infusion center and covered by Part B even if you have had no previous fracture. (Unless the rule has changed since I looked at it over a year ago or medical providers have figured out a work around... ) And then also covered at 100%......Would love to know what the Medicare Rights Center says about all this.

The situation you describe would be the best case solution for all of these disparate financial issues involved in getting drug treatment for osteo. Wouldn't that be nice??

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@rjd

Hi Windy. Now I am really confused. The only terms like "catastrophic" and "donut hole" I know about suggest payment for a prescription medication under your Part D coverage, not as a Part B outpatient medical procedure. How certain are you it is being treated under Part B rather than as a Part D drug?

When I received a Prolia injection in my doctor's office, it was processed under Part D. When I received a Prolia injection at an infusion center, it was processed as Part B medical service.

Does anyone else feel we are living in a Medicare Alice In Wonderland situation?

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@rjd I am confused too. I think my Evenity will be in the doctor's office, not an infusion center, but was told by my Medicare Advantage plan that it is covered by Medicare Part B. I expect to pay 20%. I"ll let you know. It's in a week and a half.

I thought donut hole terminology applied to both regular Medicare and Advantage plans but maybe someone can confirm or deny this!

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@ans

@nature girl5-Forteo and Tymlos are injections taken everyday vs Evenity given 1x per month- it is the expectation that one would do it by themselves, and for obvious reasons that would need to be .
Thank you for the suggestion of the talk show . I will certainly try to tune in!!

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Where the drug is being administered makes all the difference. Home vs a clinic, hospital, or infusion center.

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@windyshores

@rjd I am confused too. I think my Evenity will be in the doctor's office, not an infusion center, but was told by my Medicare Advantage plan that it is covered by Medicare Part B. I expect to pay 20%. I"ll let you know. It's in a week and a half.

I thought donut hole terminology applied to both regular Medicare and Advantage plans but maybe someone can confirm or deny this!

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The donut hole doesn't apply to Medicare Part B.
It applies to Part D - drug plans.

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@windyshores

@rjd I am confused too. I think my Evenity will be in the doctor's office, not an infusion center, but was told by my Medicare Advantage plan that it is covered by Medicare Part B. I expect to pay 20%. I"ll let you know. It's in a week and a half.

I thought donut hole terminology applied to both regular Medicare and Advantage plans but maybe someone can confirm or deny this!

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It would not be unheard of for the customer service person you speak with at the insurance company to be wrong. I would telephone again....both your doctor's office and the insurance company.

As I understand it, Susan is correct....location seems to determine how drug treatment claim is paid and what your share might be AND whether your payment counts in meeting your annual out of pocket limit.

Also, other insurance company personnel who deal with the medical provider's billing department also may not have it right. This is why whenever a provider wants me to pay for co-insurance/copay prior to service for anything other than a doctor's office visit, I decline and state that I will pay what is owed after the claim is processed and the EOB is issued.

The 'donut hole' terminology does apply to both Medicare and Advantage plans. Susan has it right as I understand it. The difference is between Medicare Part B (most medical services provided outside of hospital as described in your Advantage Plan and no donut hole) and Part D.

I have AARP/United Medicare Advantage and they occasionally test my patience on claims processing. Seems to me like there are some games being played.....wonder whether it coincides with quarterly revenue reporting to shareholders.......shocking isn't it?

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@rjd

It would not be unheard of for the customer service person you speak with at the insurance company to be wrong. I would telephone again....both your doctor's office and the insurance company.

As I understand it, Susan is correct....location seems to determine how drug treatment claim is paid and what your share might be AND whether your payment counts in meeting your annual out of pocket limit.

Also, other insurance company personnel who deal with the medical provider's billing department also may not have it right. This is why whenever a provider wants me to pay for co-insurance/copay prior to service for anything other than a doctor's office visit, I decline and state that I will pay what is owed after the claim is processed and the EOB is issued.

The 'donut hole' terminology does apply to both Medicare and Advantage plans. Susan has it right as I understand it. The difference is between Medicare Part B (most medical services provided outside of hospital as described in your Advantage Plan and no donut hole) and Part D.

I have AARP/United Medicare Advantage and they occasionally test my patience on claims processing. Seems to me like there are some games being played.....wonder whether it coincides with quarterly revenue reporting to shareholders.......shocking isn't it?

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Can someone explain what is meant by “donut hole”!!!
Please!!!

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To add confusion to the discussion, some vaccines are part d and others are part b irrespective of where given.

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