Functional Neurological Disorder (FND)

Posted by amber3212 @amber3212, Feb 20, 2019

Anyone have FND? Looking for more info and someone to talk to, also on how to get treatment. Thanks!

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@pkh3381

Is there anyone who has been diagnosed with FND, but also has significant White Matter Disease, Cerebral Small Vessel Disease, and/or MCI? I have found several articles that state that these diagnoses can have an impact on balance and walking. I am still researching this, but I would really appreciate hearing from someone with more knowledge in this area. Also, one of my MRA reports indicated my White Matter Disease is in the 75th percentile and I am wondering if that it considered high? I also have been diagnosed with "Tilted Vision" and keep trying to get Drs to listen to me, that certainly this must affect my balance and walking? Any help would be appreciated.
P

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My ENT doctor just a Balance test at the hospital for me. I started having episodes ov vertigo. This will help with a baseline. I have a meningioma.

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@patbaret

My ENT doctor just a Balance test at the hospital for me. I started having episodes ov vertigo. This will help with a baseline. I have a meningioma.

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I am sorry about your meningioma. Do they think it may be causing the vertigo?
I don't have vertigo or dizziness. My body actually moves [a body sway] involuntarily.
Best of luck with your vertigo/balance. Vertigo can be one of the hardest things to diagnose.
P

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I went for the balance test today and after she explained what was going to happen, I said no way. I have vertigo and have to sleep on two high pillows to keep my head up. She was going to have me lay flat. I had a terrible event that happened to me during a vestibular exercise. She shook my head after she had me lay on my side to get crystals in ear back in place. Next day in am threw up for 2 days, fell to floor and ended up getting tinnitus. Thus lady was going to move my head in different directions. No way, I was going to let her move my head after what happened in therapy. I left. My ENT doctor understood. I don’t think anyone with a brain tumor should try to do things that aggravate your brain.

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