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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@rajoy

My name is Rich. I am extremely depressed. Can't walk without a walker. Used to be very active, now stuck at home with no real support. Maybe you could refer me to others close by me that I could at least talk to once in a while. I am afraid Neuropathy has finished me. My next step will be a Long Term Care facility to go die in. I live in Fair Oaks CA.

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Replies to "My name is Rich. I am extremely depressed. Can't walk without a walker. Used to be..."

Welcome Rich @rajoy, I know you are not alone. Neuropathy does take a toll on us. I know it's difficult to accept new limitations, especially when you can't do things you used to love doing. Local support groups can be difficult to find especially after COVID. The Foundation for Peripheral Neuropathy does maintain some lists that might be helpful here - https://www.foundationforpn.org/support/support-groups/.

You can also find a lot of support and understanding here on Connect. Here are a few discussions that might be helpful:
--- Increasingly Difficult to Accept Peripheral Neuropathy: https://connect.mayoclinic.org/discussion/nor-accepting/
--- PN? What's good about it?: https://connect.mayoclinic.org/discussion/pn-whats-good-about-it/
--- PN: Do You Think About Things Like This, Too?: https://connect.mayoclinic.org/discussion/pn-do-you-think-about-things-like-this-too/

How long have you had neuropathy? What do you find most difficult to deal with?

Hi, Rich. Glad you posted to the group. Is your PN a result of diabetes? chemo? idiopathic/cause unknown? Is it just in your feet/legs? Also in hands? What doctors have you seen and what have they had you try to help? Is surgery an option that might improve your situation if based on stenosis/compression of nerves? So sorry to hear the big D has a hold on you. Certainly understandable with this disorder and its limitations! Hope you will find sharing with kindred spirits here in Connect will be of help!! Best wishes! Mike

Hi, Rich

I wish I had good answers to your questions, especially about others in your area you might talk with. I'd suggest continuing to post here, maybe not only on the Neuropathy forum but also on other forums. Aging Well might be a good forum to start with. I sometimes post there. I'd bet someone from Fair Oaks will reply to one of your posts sooner or later.

I remember Fair Oaks. When I was living in So. California, I had a good friend in Placerville whom I'd go to visit. I remember driving through Fair Oaks on my way to Placerville.

I look forward to seeing more of your posts in the months ahead.

Cheers!
Ray