Thank you for your response.

I probably should have led with my surgery was due to a genetic abnormality called Meckle’s diverticulum (kind of like a second appendix) that at some point in early childhood had adhered to my right kidney, and my colon had been twisting/flipping back and forth for decades (I thought this severe pain was gas). At some point it didn’t flip back in one of the episodes and I went to the ER, was told my right colon was dilated and destroyed and my bowel was twisted but they didn’t know what. Had a right hemicolectomy and a Meckle’s diverticulumotmy, and the Meckles site collapsed so had another surgery 9 days later

A year after that I started getting really sick. I had some ulcers in my small bowel which started a Crohn’s investigation. GI at Mayo said SIBO couldn’t cause ulcers but I must certainly had it do the lack of valve and gave me around of Xifaxin. No more ulcers as of the pill camera test afterwards, and I have been fine (as fine as you can be with hold acid malabsorption) except for SIBO flare ups. The current GI in the same practice said ulcers were probably caused by the acidic diarrhea getting stuck at the right surgery sites (where all the ulcers were).

The investigation is never the same. Sometimes bacterial tests. Sometimes parasite tests.

It’s just frustrating because I pretty much will always have sibo and having to do miserable stool tests 2-3 times a year for the rest of my life is depressing. And terrifying because if I lose my health insurance I will get extremely ill because I can’t do a bunch of tests.

Because they don’t think I should get xifaxin without constant tests I don’t think I can get them to give a treatment plan without it (I have a treatment plan like that for my hyperadnergic pots and hypermobility).

And I am fine with yearly tests. With colonoscopies even. But not multiple tests and office visits (I don’t live around the corner) every single time I get the sibo they told me would never go away