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Found PNET on tail of pancreas but told it’s nonfunctional
Neuroendocrine Tumors (NETs) | Last Active: Jan 14 2:54pm | Replies (97)Comment receiving replies
@maggieflorida, so I am curious to clarify was your husbands lesions
1. mm or cm?
2. what kind of imaging found it?
3. What hospital are you having the surgery at?
To this day I am so perplexed why Dr. Vege at Mayo Clinic told me and my husband that his tumor is not big enough to cause him pain(they read it was .7cm, Hopkins read it to be 1.4cm telling us they won’t do anything till it’s 2cm) When I continue to read they can cause pain(that’s how Maria Menuno found hers from pain and a MRI) how does he know that it’s sized base on whether a tumor can cause pain or not every person is different and every tumor and location is different. I just think it’s ridiculous he says this can’t cause pain. My husband is laying on the floor every night after he eats in pain and then soon after is running to the bathroom with diarrhea. This is just not normal and we can’t find a physician who wants to help him they just make him feel like he is crazy and making this all up! As a nurse I have never been more disappointed in the healthcare system.
Replies to "@maggieflorida, so I am curious to clarify was your husbands lesions 1. mm or cm? 2...."
Hello @tinerobison,
As it has been a while since you last posted, I'm wondering how your husband is doing. I hope his pain is being better controlled now. Has he had some pain relief?
When it's convenient for you, please post an update.
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@tinerobison, clearly your husband is in pain. Have you consulted with pain management specialists in palliative care to get effective pain management for your husband? This must be so hard for him, but also for you to see him suffer.