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← Return to COVID vaccines and neuropathy
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I am not a nonvaccine person. I simply had an allergic reaction that affected my nervous system. In 15 specialists across many fields including my team of regular doctors no one knows enough about the vaccine to treat the nerve damage it did. When I am out of remission I am on fire all over and pedisone is used to put it back in check. When I am in remission I mimmic MS but dont have the disease. Tingling knees to toes both feet, elboes to hands, cheeks, lips always salty. Stress is a factor in flare up. I always have to wear a mask and sanatize as I can never have another vaccine. Anyone know anything that can help me?
Replies to "I am not a nonvaccine person. I simply had an allergic reaction that affected my nervous..."
I’m so sorry about your experience. I can’t offer any advice regarding treatment, but as someone who cannot receive additional boosters, I can tell you what I’m doing to try to protect myself. I was diagnosed with vaccine induced neuropathy after my first Moderna booster. Thankfully, I have completely healed. I run the risk of a return of the neuropathy if I get another vaccine OR if I actually get Covid. In place of a vaccine, I received AtsraZeneca’s monoclonal antibody shots. This provided me with antibodies that my immune system did not have to generate, therefore my immune system did not overreact causing damage to my nerves. I was supposed to get my second dose last March but it was no longer effective with the new variants. I am waiting for government approval of a modified version of the AstraZeneca monoclonal antibody treatment or a new version of something similar from Regeneron. I also always wear a mask anywhere indoors since I am under vaccinated at this point. Again, this doesn’t help your current condition but it may be something to investigate so that you feel more protected. Best to you.
I took my second booster in Jan 2021. Less than two months later my heart was going all over the place. I had a one month holter monitor test. Diagnosed with cardiac autonomic neuropathy due to the Covid shots. My cardiologist and electrophsiologist said it’s very well documented in the journal of cardiology. There’s nothing that can be done. I am trying to get IVIG therapy. I was told from the time of being diagnosed you have approximately seven years left to live. We shall wait and see. My cardiac meds were just upped. I take them three times a day. The dosage was no longer controlling the arrhythmias.
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Welcome @www3, I moved your question to this existing discussion to help you connect with others:
- COVID vaccines and neuropathy: https://connect.mayoclinic.org/discussion/covid-vaccines-and-neuropathy/