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I have a menigioma. Should I wait or go ahead with surgery?
Brain Tumor | Last Active: Nov 28, 2023 | Replies (30)Comment receiving replies
I am sure you sharing your positive experience will be encouraging to others who are in the process of accepting that they need to have the surgery. I do feel that the location of the meningioma can make a big difference with regard to our personal experience. Mine was removed 3 weeks ago and was 1/16th of an inch from my optic nerve. A post surgery MRI showed that the entire 3 centimenter meningioma was resected and no damage to the optic nerve in the process, but my recovery has been difficult. I have severe double vision and a lot of what I assume is zinging nerve pain on the left side of my head. As in real estate, I assume location, location, location, can make all the difference in our surgical outcome.
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My experience - after two emergency surgeries to remove a 3cm meningioma, and then another surgery to deal with infection of the healing wound - is that the first, the craniotomy, was so easy in terms of in and out in four days and no pain at all after. The second "repair" surgery, which did not have to go back into the skull, caused residual pain and headaches for about 2-3 weeks. (that surgery was Oct 5 of this year). I currently have periodic mild headaches, but nothing serious, and I believe that, over time, these will subside. So, all of this to say that try to be patient with your body's healing. A UK site (one of the many I've been researching on brain tumors and surgery) says it takes many weeks or months to heal from brain surgery. I think I expect my body to recover much faster than it needs. I'm trying to learn patience to let it heal slowly and well, while focusing on a very healthy diet, lots of sleep and rest breaks. Our bodies need it! Best to you.