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Experiencing/going through testing for long fiber neuropathy?
Neuropathy | Last Active: Nov 7, 2023 | Replies (10)Comment receiving replies
Did your symptoms come on abruptly or did they come very slowly? Mine came very slowly over a 10 yr period starting out with just a numb big toe for a year or 2 then bottom of feet feeling weird for about 2 years then top of foot then ankles etc. It seems it must be some type of missing nutrient the way it progressed but have not found a cause with numerous tests. Both legs are exactly the same so doctors say it is systemic rather than caused from my bk or other structural cause. All blood work is good except hyperthyroid which causes me no symptoms and normally only hypothyroid causes PN so does not seem to be linked. I sure hope you find a cause.
Replies to "Did your symptoms come on abruptly or did they come very slowly? Mine came very slowly..."
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My symptoms came on slowly. It started with the feeling there was a thread or string around my big toe. I had chemo about 15 years ago and somehow I got the impression that you either got neuropathy in your feet right away or it could start 10-15 years afterwards. My neurologist is not aware of this happening. He says my neuropathy is not from chemo or diabetes. I am a pre-diabetic. I am still in the testing stage --26 vials of blood sent off to have 13 tests performed by a couple well know medical facilities. Just completed today EMG testing for my upper body. Lower body was done a couple weeks ago. My legs are far worse than my arms. The end of November all the tests and blood work should be evaluated and at that appointment I hopefully will find out more, what I have, the known cause and what they can do about it to stop or slow down the progression. Will post a summary of that appt then.