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I’m Not Responding to Prednisone and I Need Advice
Polymyalgia Rheumatica (PMR) | Last Active: Nov 24, 2023 | Replies (72)Comment receiving replies
My issue is not weight related but that I am post polio. Another condition with little information and almost no doctors/specialists to treat it.
I had polio at age 15. In the years following I became hypersensitive to medications often having side effects from pediatric doses. I became allergic to antibiotics. Little did I know I should not have had the Shingrix vaccine.
Currently I’m at 5mg of prednisone and had problems at 4mg. I suspect that being post polio this low dose is more harmful to my body than others experience. But I have no choice.
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I'm hypersensitive to atorvastatin. My cholesterol level is too low when I take a normal dose. My cholesterol level is too high if I don't take any atorvastatin.
My CK level is always higher than normal and my rheumatologist stops atorvastatin because my cholesterol level is too low and is concerned about statin induced myopathy. My primary care doctor restarts atorvastatin when my cholesterol level gets high again.
https://www.testing.com/tests/creatine-kinase-ck/
The compromise now is to take the lowest atorvastin dose available, break it in half, and take half a pill every other day.
My CK level was still high the last time it was checked. The CK level problem was solved by not checking my CK level anymore.
The way medications interact with each other can really cause havoc for some people. Our bodies are nothing more than chemical elements mixed together in different proportions just to make us all different.