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Anyone here with Hurthle Cell (Oncocytic) Carcinoma?

Thyroid Cancer | Last Active: Jan 19 8:13am | Replies (62)

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@koh

Welcome to the group. I had a large nodule removed with a lobectomy that turned out to be Hurthle Cell Carcinoma. I have not had to have the other lobe removed( so far). It’s my understanding that if your HCC had a low level of invasion you might not need to have the other lobe removed and they can just monitor it. If you have a fairly contained cancer, you might want to ask if this is an option. It seems like they used to feel that HCC meant you had to have your whole thyroid removed, however now they don’t always have to do that. Always worth checking to see if the removal of other lobe is preventative or if it is actually a big risk due to the characteristics of the HCC. Good luck!

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Replies to "Welcome to the group. I had a large nodule removed with a lobectomy that turned out..."

Thank you. That’s good to know. I do have some invasion in blood vessels and the tumor was quite large. But I’m going for a second opinion since I’m a professional singer and this has been quite debilitating and scary. And I would love to avoid a second surgery in 3 months if I can. Luckily I live in NYC and there are lots of good doctors and hospitals. Thanks for reaching out to me. And stay well!!