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Has anyone been diagnosed with GFAP
Autoimmune Diseases | Last Active: Oct 26 3:57pm | Replies (61)Comment receiving replies
Hello! I was diagnosed during the summer. became ill at the beginning of the summer, received treatment and feels much better now.
Replies to "Hello! I was diagnosed during the summer. became ill at the beginning of the summer, received..."
Where did you receive treatment? My father was diagnosed. We live in Orange County, Southern California. I try to find a hospital or doctor nearby that specializes in treating this disease.
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My husband was diagnosed December 2022.
He started with symptoms in April 2022, they kept thinking he had lymphoma somewhere; so, many months were wasted in not getting the right diagnosis and treatment. He currently still has a balance problem and a sight issue. He was finally on an eight month treatment of prednisone starting with 70mg and tapering down 10mg each month. He was also on mycophenolate , an antibiotic, and other supplements. This was his cocktail.
I am curious to know what your treatment was and for how long. Also what were your symptoms.
We have been trying to connect with someone who has this, since they keep telling us it is so rare.
Thanks for listening!