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DiscussionSjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Sep 21 9:28am | Replies (630)Comment receiving replies
Replies to "@cblue the schedule of 6-2-10 is exactly every 8 hours and you won’t have to keep..."
Follow up question I’ve been trying to get to your schedule, but I’m not there yet. Questions though you and those who take civemeline ((sp?) … at times it seems like I have too much saliva, but the saliva doesn’t feel like real saliva. It feels it has more of a mucousy feel I’m wondering what others who take this feel. I thought I read either at this website or this the advocacy site, but this saliva doesn’t protect teeth, is that accurate? My dentist is prescribing fluoride treatment daily. I’m responding to one person, but I’m happy to hear from any others who have Sjogrens and take this medication.
Thanks for suggestions. To switch I would have to take a dose early. My doctor at first wasn’t responding (odd, she was very responsive when I has vascultis..lab work which somehow ruled out auto immune cause. ), so I haven’t asked anything. However, I eventually received a call from her assistant to renew a prescription & offer me an appointment in a few weeks. I don’t how if she will respond to portal messages. I Haven’t tried since reaching the assistant last week. But especially since the end of daylight savings time evenings are worse “earlier “… The evening dose of cevimeline doesn’t work & eyes & sensitivity to sound and joint pain all increas. Sleeping is impossible.. but during the day if I keep moving.. I’m not too bad. Starting to lose hair from the hydroxychloroquine maybe? How much hair will I lose? ( female- hope not all !! !