Thank you for your feedback. No I have not and will follow-up. I just found an FND Treatment portal that listed 10 institutions that are actively researching FND, very helpful. Although my son has gotten to the point where he is not ambulatory and can only speak in a whisper, the Robert Woods Johnson Neurology Team he saw felt he needed both psychiatry/psychotherapy as well as physical therapy from a research medical team that fully understood the FND spectrum and specialized in it. Mayo is on that list and it was the first we sought help from because of the trust my son had for the clinic based on his previous experience. We tried but 3 departments turned us away. Based on the links, I am in the process of trying to connect with the Yale University PNEA group, Mass General, and Brigham and Woman's Hospital, all within reasonable driving distance. My daughter, who lives in California, is also following up with Stanford. Looking at the medical staffing at these 4 institutions I find that their skill base is much broader and specialized in addressing the various aspects of FND. Mayo's focus seems to be only confirmation of diagnosis but no follow-up. We are in desperate need of the follow-up.