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Anyone here with Hurthle Cell (Oncocytic) Carcinoma?

Thyroid Cancer | Last Active: Jan 19 8:13am | Replies (62)

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@mrsluckycat

Thanks for reply. Heard from him today. I have to get the other lobe removed in 3 months and then take the radioactive iodine. Not happy about having surgery again and delaying the return of my singing voice but at least I heard from dr. Glad u survived your Hurthle issues so long ago. Stay well!

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Replies to "Thanks for reply. Heard from him today. I have to get the other lobe removed in..."

Welcome to the group. I had a large nodule removed with a lobectomy that turned out to be Hurthle Cell Carcinoma. I have not had to have the other lobe removed( so far). It’s my understanding that if your HCC had a low level of invasion you might not need to have the other lobe removed and they can just monitor it. If you have a fairly contained cancer, you might want to ask if this is an option. It seems like they used to feel that HCC meant you had to have your whole thyroid removed, however now they don’t always have to do that. Always worth checking to see if the removal of other lobe is preventative or if it is actually a big risk due to the characteristics of the HCC. Good luck!