Good afternoon, @shirleymac I am pleased you have found kindred spirits here at Connect. It certainly helped me knowing I was not going through this alone, even if I was doing it alone.

I imagine hospice in each state/area is somewhat different but here are some of the critical assistance we received from our hospice folks. My wife and I were able to do home hospice so some may not relate to your and your husband's situation.

My wife received far more regular checks by the hospice doctor and WAY more and frequent attention from her hospice nurses. We were able to then adjust her medications more often and quicker when they needed to be adjusted. In our case, hospice also delivered all her meds, which was a huge help (but this was before COVID when home delivery became much more of an available service. They also helped arrange for her durable medical equipment needs as those changed as well.

Our hospice staff also gave us some solid advice on who they viewed as "trusted service providers" in our home for her final needs, which she had outlined ahead of time. We still needed cremation services, etc. and their suggestions were invaluable.

I'm happy to answer any more questions too!

Strength, Courage, & Peace