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Had lobectomy in 2020 still having radiating severe nerve pain.
Lung Cancer | Last Active: 1 day ago | Replies (114)Comment receiving replies
Thanks - I needed that. I worked in Banking in an area of regulatory performance where acceptable error was virtually zero. So I have challenges expecting less in my own life - as I’m sure my children would affirm 🙂
My Rheumatologist is really more like my primary because until this lung cancer, RA sat at the top of my risk list. But it was pure chance that I learned that Prednisone mitigates Rib and Diaphragm pain. That’s big to me. It tells me that eventually it could resolve or that other meds less dangerous over time than steroids could help manage it.
The scarring/fibrosis associated with the lobectomy is an ‘is’. Disappointing but … I think I only see effects of that with exertion.
But thanks again for support and the virtual forehead thump. 😜
Replies to "Thanks - I needed that. I worked in Banking in an area of regulatory performance where..."
Your comments are interesting. I had VAT surgery, so they push instruments between ribs and that interrupts the nerves. In fact, I had fractured rib. My nerve pain is gone (6 months), but I feel stiffness and hardness when I take significant breath and a numbness like a belt under the breast. I am currently on Prednisone (40mg for 2 weeks, then 30mg, 20mg for total of 6 weeks) and it has not taken those sensations away. It does help me to breath for suspected alveolitis (am learning to spell/misspell lots of words now)
Prednisone of course lowers immune system response so need to be cautious to avoid contagious disseizes and also in a few months it can significantly impact bone density.
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I too complained of rib & diaphram pain for a couple years post op & all I got was oh sometimes that happens after a lobectomy with no offer of diagnosing & treating it. It almost always happens when I bent over from a sitting position. Now I know what it is & how it could be treated. I am happy for the knowledge but disappointed that none of my doctors told me that.