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Had lobectomy in 2020 still having radiating severe nerve pain.

Lung Cancer | Last Active: Jul 9 2:51pm | Replies (118)
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@lls8000

Hi Pam, @pb50, It's easy to doubt treatment decisions after the fact, but we never really know what else may have happened without the lobectomy too. We make the best decisions that we can with the information that we have at the time. It's all a learning experience, and you've been so very helpful in guiding others on Connect to ask the right questions. Thank you for that.
It sounds like the RA certainly complicates things, but I'm glad you are finding some relief, even if it's temporary. It sounds like you've tried steroids before, so you somewhat know what you're up against, and when it's too much. I hope the flare calms down for you soon, and I'm glad you pulled your rheumatologist in too!

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Replies to "Hi Pam, @pb50, It's easy to doubt treatment decisions after the fact, but we never really..."
pb50 | @pb50 | Nov 6, 2023

Thanks - I needed that. I worked in Banking in an area of regulatory performance where acceptable error was virtually zero. So I have challenges expecting less in my own life - as I’m sure my children would affirm 🙂

My Rheumatologist is really more like my primary because until this lung cancer, RA sat at the top of my risk list. But it was pure chance that I learned that Prednisone mitigates Rib and Diaphragm pain. That’s big to me. It tells me that eventually it could resolve or that other meds less dangerous over time than steroids could help manage it.

The scarring/fibrosis associated with the lobectomy is an ‘is’. Disappointing but … I think I only see effects of that with exertion.

But thanks again for support and the virtual forehead thump. 😜

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