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Neuropathy and feet feeling heavy.

Neuropathy | Last Active: Nov 7, 2023 | Replies (15)

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@msr2323

Good am!
I’m going to add a bit to your string of comments, if that’s ok?

I was dx with late onset MS at age 65 in 2015. I presented with a tingling/buzzing sensation in my torso and a “tightness” in my feet. I was evaluated by a neurologist and prescribed gabapentin 3x’s daily and the use of Avonex, an intramuscular self injected autoimmune modulator.

In 2018 I was dx with bladder cancer. Was seen and appropriate treatment was/is provided.

In 2020 I was dx with breast cancer. Eval, lumpectomy, chemo and then radiation.

After chemotherapy my feet began to feel worse and I experienced additional tightness and numbness up my left leg to my knee and some numbness on the right. I describe it thus, “I feel like my feet are wrapped in duct tape, tight, rough and scratchy and my leg feels like I’m wearing a shin guard. The pattern is up the outside of my calf and around to my shin and just under my knee.”

Everyone except the neurologist seems to think there no connection with chemotherapy to breast and this PN condition and more likely it is the MS. Very hard to know since MS can be all over the place. I am still freely ambulatory, though my balance can be a bit off and I do experience that “heavy foot” and leg sensation, but very little pain. I do get the occasional nerve “zap” and the “crawling” under the skin sensation. I have been on 1800 mg of gabapentin since 2015 (built up, of course), but I’m not sure what it’s actually doing because I haven’t gone off of it to see the change it makes…I am made aware that there is little to do for the neuropathy except to 1) live with it & 2) treat symptoms with whatever prescribed agents are available or 3) find something that makes you as comfortable as possible, which may mean medical intervention, PT, etc.

Thanks for your time.

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Replies to "Good am! I’m going to add a bit to your string of comments, if that’s ok?..."

Feeling heavy on your foot/leg? For me is is heave cause the feeling is cone, if I walk too long… is there anything can help me? No. Soon I’m going to another doctor and fix or, at least, can check what’s in there. Another doctor was look*ng close to the bottom of my butt found a nevrve (sp?) right next or on was liked “glued” on my leg muscle/bone.