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Anyone had DCIS high-grade diagnosis?

Breast Cancer | Last Active: Nov 11, 2023 | Replies (24)

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@jilly615

In my case, it could be. I had 2 incisions, one for the nodes & one for the tumor, close to the same area. The docs believe the nerve pain seems to be a combination of scar tissue at the surgical sites & perhaps continued healing from the radiation. I had a bit of the nerve twinges in the few months after radiation, but nothing like this. It was just every once in a while. This new sensation started 10 months after radiation. They did a CT scan of the arm & chest to be sure it wasn't some sort of blockage, they found nothing more than scar tissue at the site, which for me is close to the chest wall. I am doing exercises & lymphatic massage to help things break up and keep the fluid moving. Icing the arm is great for nerve pain, just numb it right up!

I think radiation is mentally tiring because you have to go every day, except weekends and its a constant reminder you are a cancer patient. Barely takes 30 minutes from when I got there to when I left. I felt no different in energy level until into the 3rd week when the afternoon fatigue began to hit.

Keep up your PT exercises after your skin feels better. I found it helped to ease the soreness a bit. Can't imagine what my scar tissue would have been like without doing them. And I can not speak highly enough about Aquaphor. Even my surgeon was surprised at how great my skin looked. I started right after surgery and continued for 2 months after radiation every night. I bought some cheap tank tops a few sizes too big at Wal-mart to throw away after, so I wouldn't ruin my favorite pjs, as the Aquaphor will leave a bit of a grease stain.

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Replies to "In my case, it could be. I had 2 incisions, one for the nodes & one..."

Thank you for your response. Our situations seem similar as far as the 2 incisions near each other.
I had the lumpectomy and then the sentinel node surgery. I didn’t have clear margins after my lumpectomy though, so they had to go back in the same incision and take more out. But the sentinel node surgery was the one that kicked my butt!
I am so glad that they only found scar tissue when they did your CT scan!
Thank you for all of the great suggestions.
Take care!