← Return to Experiencing/going through testing for long fiber neuropathy?

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@smithtn

Thank you John for that information. I will certainly take advantage of it. A few of my symptoms of large fiber neuropathy at this time are balance issues( I cannot stand without holding on to something); if I stand in one place for too long my feet start to burn and it is hard to start walking on them; numbness in my feet and swelling if I do not wear support hose and my walking gate has changed. Of course there is that ever present fear of falling (mainly because I have and one time severely damaged my shoulder. I am beginning to experience funny sharp pains in my legs sporadically and wondering if it is when another nerve has shut down (will be seeing the doctor again this week for testing and will ask then). I am in the process of testing (extensive blood work and EMG and maybe more) and don't get results until end of November. Hoping by then there is an action plan to move forward. I will share this information. Am purchasing a carbon fiber rollator that weighs under 11 lbs so I can easily get it in and out of my car and continue an active life despite neuropathy.

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Replies to "Thank you John for that information. I will certainly take advantage of it. A few of..."

Exercise is beneficial I have found. I have long fiber PN diagnosed as idiopathic. Although doctors don't know cause common sense tells me there is some cause. Except for this I would say my health is absolutely great at age 71. With daily exercise I have managed to stay very active in spite of "walking on rocks" sensation and stiffness and pressure in toes ankles and now up my shins. My balance while standing on one foot is only slightly off. There are things that help heal nerves even long fiber nerves. Keep moving all you can. Request physical therapy and continue it at home every day or even 2x a day I wish you the best!!