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@katietinco

I've been struggling with this on and off for a while after having had a MOM hip replaced 8 years ago. I had a rash that has never gone away completely that I always suspected was due to the MOM device. Fast forward to a couple of months ago and I had a full-on, systemic reaction to something.
Doctors were all stymied by it and couldn't figure out what was causing my reactions - brain fog and fatigue beyond belief, sensitivity around all of my surgical sites from the last 8 years, blurry vision, swollen lymph nodes, symptoms of thyroid issues even though I had a partial thyroidectomy in April. After looking at my calendar, I was the one who identified that my problems started just a few days after I had a new dental crown put on. I got the info on the crown and the cement from the dentist and discovered the cement has "antimony nickel titanium oxide yellow" in it. I then had sensitivity testing done by Orthopedic Analysis and discovered I am highly reactive to nickel.
My replacement hip is titanium but I know it probably contains nickel as well so now, we have to see if it will settle down and this "flare up" is a reaction that will go away over time or ??? I hate the thought of removing anything that contains any nickel, especially my hip as it was surgery #5 on that one, but I also know the brain fog and fatigue have been excruciating. No life. Work is suffering. Marriage is suffering.
Good luck @april0608 and don't give up.

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Replies to "I've been struggling with this on and off for a while after having had a MOM..."

Wow, I am so fortunate that my hyperreactive inflammatory/ immune response, acquired from the metallosis 12-13 years ago (both hips) hasn't extended to the surgical metals in my thumbs or to my recent crowns.
Bad enough that every little bug, cut or bump sets it off - at least those are transient.
I hope they can find a way to desensitize you.
Sue

Katie
I so understand what you are going thru! All very similar to me with my knee replaced replacement I had done jan 2021 and redo glue did not bond to bone July 21. After 2 years 30 plus drs I have found like you allergic to nickel but also 11 of the other 15 metals in my implant. Someone on Mayo web site recommended a dr in texas who specializes in allergies of all kinds. I had a zoom call with her on a Thursday and my husband and I were so impressed we flew the following Monday to Dallas. I live near Chicago but flew to Dallas she is one of two drs/ labs in country who can test all different types of allergies.
So many drs don’t understand this or don’t believe it’s an issue.
I would be happy to share with you all I have learned. Feel free to private message me.
I can then share my phone number. I’m have spoke with people in florida and Boston with similar issues.
I feel like we all need to help each other.
Good luck to you
Please know I am happy to share all I learned