← Return to Anyone had DCIS high-grade diagnosis?

Discussion

Anyone had DCIS high-grade diagnosis?

Breast Cancer | Last Active: Nov 11, 2023 | Replies (24)

Comment receiving replies
@mchler73

@jilly615
Do you think the nerve pain was due to having the Lymph nodes removed? I also had 2 nodes removed and have had lots of issues with nerve pain and cording since that surgery, which was over 2 months ago. I have been in PT and it is finally starting to get better.

I am supposed to start radiation this Thursday and am really not sure what to expect at all! I hope the radiation doesn’t cause the nerve pain to return like it had been.
Also, so glad to hear the aquaphor helped you! I’ve already been using it in hopes it will help my skin not be affected as much.
Thank you!

Jump to this post


Replies to "@jilly615 Do you think the nerve pain was due to having the Lymph nodes removed? I..."

In my case, it could be. I had 2 incisions, one for the nodes & one for the tumor, close to the same area. The docs believe the nerve pain seems to be a combination of scar tissue at the surgical sites & perhaps continued healing from the radiation. I had a bit of the nerve twinges in the few months after radiation, but nothing like this. It was just every once in a while. This new sensation started 10 months after radiation. They did a CT scan of the arm & chest to be sure it wasn't some sort of blockage, they found nothing more than scar tissue at the site, which for me is close to the chest wall. I am doing exercises & lymphatic massage to help things break up and keep the fluid moving. Icing the arm is great for nerve pain, just numb it right up!

I think radiation is mentally tiring because you have to go every day, except weekends and its a constant reminder you are a cancer patient. Barely takes 30 minutes from when I got there to when I left. I felt no different in energy level until into the 3rd week when the afternoon fatigue began to hit.

Keep up your PT exercises after your skin feels better. I found it helped to ease the soreness a bit. Can't imagine what my scar tissue would have been like without doing them. And I can not speak highly enough about Aquaphor. Even my surgeon was surprised at how great my skin looked. I started right after surgery and continued for 2 months after radiation every night. I bought some cheap tank tops a few sizes too big at Wal-mart to throw away after, so I wouldn't ruin my favorite pjs, as the Aquaphor will leave a bit of a grease stain.