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Experiencing/going through testing for long fiber neuropathy?
Neuropathy | Last Active: Nov 7, 2023 | Replies (10)Comment receiving replies
Hi @smithtn, I would like to add my welcome to Connect along with @marchelle and others. There is another discussion that has some references that might be helpful:
--- Small and Long Fiber Neuropathy – What's the difference?: https://connect.mayoclinic.org/discussion/small-and-long-fibre-neuropathy/.
There is no real cure for neuropathy but there are many different treatments for providing relief from the neuropathy symptoms. If you want to learn more about neuropathy, the following sites have a lot of good information.
--- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
--- Neuropathy Commons: https://neuropathycommons.org/.
You might also want to look through existing discussions in the Neuropathy Support Group to see if any might be helpful - https://connect.mayoclinic.org/group/neuropathy/
Do you mind sharing more about your symptoms and any treatments you've tried?
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Thank you John for that information. I will certainly take advantage of it. A few of my symptoms of large fiber neuropathy at this time are balance issues( I cannot stand without holding on to something); if I stand in one place for too long my feet start to burn and it is hard to start walking on them; numbness in my feet and swelling if I do not wear support hose and my walking gate has changed. Of course there is that ever present fear of falling (mainly because I have and one time severely damaged my shoulder. I am beginning to experience funny sharp pains in my legs sporadically and wondering if it is when another nerve has shut down (will be seeing the doctor again this week for testing and will ask then). I am in the process of testing (extensive blood work and EMG and maybe more) and don't get results until end of November. Hoping by then there is an action plan to move forward. I will share this information. Am purchasing a carbon fiber rollator that weighs under 11 lbs so I can easily get it in and out of my car and continue an active life despite neuropathy.