@ultrajko I understand exactly what you are saying about your wife not being seen by her primary doctor when she was in the hospital. Unfortunately, it’s one of the new ways in hospital care. Doctors, who are called hospitalists, are responsible for patients while they are in hospital. The primary doctor doesn’t see the patient, they are given a report/update by the hospitalist. Someone somewhere must think it works well, but it is difficult for the patient and family. I don’t know what the primary care doctors think of it, but. . . . .
I just want to give you a hug. I know you are trying to do the best you can against great odds and it’s extremely difficult. All I can say is to keep trying.
Edit: this seems to be a much better definition of a hospitalist:
https://www.yalemedicine.org/news/what-is-hospitalist#:~:text=A%20hospitalist%20is%20a%20physician,obstetrics%20and%20gynecology%2C%20or%20oncology.
The next time your wife is in hospital (hopefully never), find out when the hospitalists makes rounds, so you can meet them. Maybe express your concerns to them, concerns that you want the primary to know. It may really help!