My spouse was diagnosed with GEP-NET and "heavy load" of tumors on the the small intestines and the adjoining area. He underwent bypass surgery of a tumor the size of a lemon and was doing fairly well. He started Lanreotide treatment and after 4 injections with no side effects he under went Lutathera treatment. Three days after the treatment he became septic. They were unable to find the area but suspected the Lutathera had worked so well it "melted" a tumor that exposed his instesines. They put in three drains and attempted to "divert" the area.
They decided to halt the Lutathera as the treatment was to dangerous for my spouse. They continued the Lanreotide. After another 2 shots he developed issues with his gall bladder; a side effect of Lanreotide. He became setic again. He recovered and continued with the Lanreotide shots. After that next shot he got a nasty case of Vertigo from which he has not totally recovered. After the next Lanreotide shot - after drinking a cup of chicken soup and going to bed he began to regurgiate the soup and coughing. In the morning his Blood pressure was down as wash his oxygen level. We went to the ER and they diagnosed aspirational pneumonia. The oncologist thought it was a conincidece. He just had a shot again and the same thing happened. This time we got him up out of bed and sat up until 2am. He was better in the morning and hasn't had an issue since.
Has anyone had any sort of similar side effects. The oncologist still thinks it's coincidental. But my spouse who is on TPN is now reluctant to eat any solid food for fear he will aspirate again.
Any suggestions from anyone would be appreciated.
Hang in there,
Ginny