Connect
← Return to Living with Neuropathy - Welcome to the group
Discussion
Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Hi Ruth @rllh5403, Welcome to Connect. It must be extremely difficult dealing with SFN and PMR together especially if you have neuropathy pain along with the pain all over from PMR. I've had small fiber peripheral neuropathy since my early 50s and have had PMR occurrences twice. I've been fortunate that my neuropathy symptoms are only some numbness and minor tingling in my feet and legs. The 2 occurrences of PMR were awful to say the least. I hope your new doctor is a keeper also. When you find a doctor that listens you have a winner.
The Neuropathy and Polymyalgia Rheumatica (PMR) Support groups have a lot of great discussions where you can read what others have learned and ask questions you may have. Here are links to the home page for each group where you can view all of the different discussions:
--- Neuropathy Support Group: https://connect.mayoclinic.org/group/neuropathy/
--- Polymyalgia Rheumatica (PMR) Support Group: https://connect.mayoclinic.org/group/polymyalgia-rheumatica-pmr/.
Have you started a treatment for both your SFN and PMR?
Replies to "Hi Ruth @rllh5403, Welcome to Connect. It must be extremely difficult dealing with SFN and PMR..."
Connect
No bc I haven't found a Dr. that knows how to treat it properly. Fortunately, I don't have a lot of pain. But I do have symptoms but I don't even know if they are related to PMR or SFN or not. Every time I ask my Dr. a question, he doesn't know the answer. He is treating me for the SFN. He gives me gabapentin, but that's it. I have incontinence, skin rashes, my nail come off, chronic fatigue, pains in my head from time to time to mention a few symptoms. I've just learned to live with it. I'm glad I found the support group. I'm learning a lot from other patients.