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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 6 hours ago | Replies (6011)
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@rllh5403

My name is Ruth. I have SFN and PMR. I do have sharp pains in my toes. At this point I have not been diagnosed with diabetes, however, my glucose goes up and down, not real high. The last time I had it checked it was 134. Cleveland Clinic diagnosed my SFN and a local Dr. verified my PMR. I've had a real hard time trying to find a good neurologist to treat my SFN and hopefully PMR too. I'm in the process now of trying a new Dr. but I couldn't get an appointment until the end of February 2024. I have lived in central KY all my life. I've also been having some problems with my fingernails coming off. I am a nail biter. They grow back, but I didn't know if that was related to the SFN or not. I'm glad I found a support group and hope this new Dr. is a keeper. My last neurologist cancelled my appointment with no explanation. I wasn't impressed with him anyway.

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Replies to "My name is Ruth. I have SFN and PMR. I do have sharp pains in my..."
John, Volunteer Mentor | @johnbishop | Nov 5, 2023

Hi Ruth @rllh5403, Welcome to Connect. It must be extremely difficult dealing with SFN and PMR together especially if you have neuropathy pain along with the pain all over from PMR. I've had small fiber peripheral neuropathy since my early 50s and have had PMR occurrences twice. I've been fortunate that my neuropathy symptoms are only some numbness and minor tingling in my feet and legs. The 2 occurrences of PMR were awful to say the least. I hope your new doctor is a keeper also. When you find a doctor that listens you have a winner.

The Neuropathy and Polymyalgia Rheumatica (PMR) Support groups have a lot of great discussions where you can read what others have learned and ask questions you may have. Here are links to the home page for each group where you can view all of the different discussions:
--- Neuropathy Support Group: https://connect.mayoclinic.org/group/neuropathy/
--- Polymyalgia Rheumatica (PMR) Support Group: https://connect.mayoclinic.org/group/polymyalgia-rheumatica-pmr/.

Have you started a treatment for both your SFN and PMR?

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