← Return to Sjogren’s Syndrome – Introduce yourself and meet others

Discussion

Sjogren’s Syndrome – Introduce yourself and meet others

Autoimmune Diseases | Last Active: Sep 21 9:28am | Replies (630)
Comment receiving replies
@cblue

I have probably had this for at least two years, but was recently diagnosed cevilemine three times a day. can’t get timing , right? Wake up in the middle of the night unable to swallow, all dried up believe it or not no sugar chewing gum helped. But can anyone suggest a good schedule for taking that medication three times a day I end up having to take it in the middle of the night and don’t wake up in time, wake up in pain and dry eyes glue shut . Sorry middle eye posting excuse. Any errors or incoherent sentences. If you wish, send private communication.

Jump to this post

Replies to "I have probably had this for at least two years, but was recently diagnosed cevilemine three..."
cpd54 | @cpd54 | Nov 4, 2023

I can’t help with your dosing issue but have you tired Xylimelts , https://www.oracoat.com/, at night? They’re lozenges that stick to your gums and slowly melt during the night. They work great for me. No tongue stuck to the top of my mouth when I wake up…

VIEW AND REPLY
Becky, Volunteer Mentor | @becsbuddy | Nov 4, 2023

@cblue That sounds awful! How long have you been taking cevimeline? I’ve read that it can take several weeks to notice the effects.
When i have to take medicine 3 times a day, I schedule it at 6am, 2 pm, and 10pm. This schedule evenly covers the 24 hours. And you don’t have to take pills at night.
I worry, though, that you chew gum at night. Aren’t you afraid of swallowing the gum? A better idea might be to use a sugar free lollipop. Since it has a stick, you can hold it in your mouth for a few minutes and then take it out. Or, how about ice chips. They’ll moisten your mouth and disappear!
Do any of these suggestions sound reasonable?

VIEW AND REPLY