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Sjogren’s Syndrome – Introduce yourself and meet others

Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)
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@cblue

I have probably had this for at least two years, but was recently diagnosed cevilemine three times a day. can’t get timing , right? Wake up in the middle of the night unable to swallow, all dried up believe it or not no sugar chewing gum helped. But can anyone suggest a good schedule for taking that medication three times a day I end up having to take it in the middle of the night and don’t wake up in time, wake up in pain and dry eyes glue shut . Sorry middle eye posting excuse. Any errors or incoherent sentences. If you wish, send private communication.

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Replies to "I have probably had this for at least two years, but was recently diagnosed cevilemine three..."
cpd54 | @cpd54 | Nov 4, 2023

I can’t help with your dosing issue but have you tired Xylimelts , https://www.oracoat.com/, at night? They’re lozenges that stick to your gums and slowly melt during the night. They work great for me. No tongue stuck to the top of my mouth when I wake up…

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Becky, Volunteer Mentor | @becsbuddy | Nov 4, 2023

@cblue That sounds awful! How long have you been taking cevimeline? I’ve read that it can take several weeks to notice the effects.
When i have to take medicine 3 times a day, I schedule it at 6am, 2 pm, and 10pm. This schedule evenly covers the 24 hours. And you don’t have to take pills at night.
I worry, though, that you chew gum at night. Aren’t you afraid of swallowing the gum? A better idea might be to use a sugar free lollipop. Since it has a stick, you can hold it in your mouth for a few minutes and then take it out. Or, how about ice chips. They’ll moisten your mouth and disappear!
Do any of these suggestions sound reasonable?

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