I went to my regular dermatologist in September 2022 with a suspicious sore on my scalp. She biopsied and reported it was squamous cell. She referred me to Metro Mohs for treatment. I called them but could not get an appointment until December--thinking I should act more quickly, I called Johns Hopkins since it is not too far from me, in Baltimore MD. My first visit to Hopkins was Nov 2, 2022. I pointed out a large red area around the bump and they subsequently took 7 biopsies, 3 of which came back as squamous cell. I was ready to do the Mohs thing right away. They said I was "very brave" and then they encouraged me to try the Efudex cream since there was such a large area involved, for 6 weeks.
On my next visit in January 23, Johns Hopkins redid biopsies and only one area remained squamous cell positive. They had me do the cream again and I opted to follow up with my regular dermatologist since it was closer. I visited her in Aug of 23 --she did a biopsy of the one original area and said it was negative. My last followup visit was in Oct 23--I mentioned the redness around the area is still there. She directed me to try the cream for 3 more weeks and did not do anymore biopsies. At this point, I am wondering what to do. So much time has gone by and I'm concerned about spreading. I don't know whether to go back to Johns Hopkins or try to find a dermatologist near my home who specializes in squamous cell (if there is such a dr.) I should mention I am autoimmune (with rheumatoid arthritis). Any advice or information is appreciated!