Hi Bill: I completely agree that there is little help for us caregivers and have been looking everywhere for help. I couldn’t even get a social worker to help because there are so few and they all have a heavy caseload.
I have found an organization you might want to contact:
http:/www.
seniorservicesassocinc.org
We are In Illinois but this organization is in almost every state.
They are a non-profit organization and work with your insurance company to get care for you and your loved one. They are giving me 5 hours a week to care for my husband and send someone to access his needs. This seems too good to be true and I will keep you posted as time goes by. Could you let me know if you look up this organization and what happens?
Here is a phone number of my care coordinator who can direct you to services in your state:
Mayra Gonzalez
(847) 741-0404
You can tell her I referred you to her.
I’m Janet Lux