← Return to DISH (diffuse idiopathic skeletal hyperostosis) or Forestier's

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@mitchell007

I have had DISH for approximately 10 years now aged 63, very medications provide relief, best to concentrate on what we can do, rather than what we can't, exercise is your friend, with rest periods, walking light physical exertion, no upper body pulling towards no bending.

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Replies to "I have had DISH for approximately 10 years now aged 63, very medications provide relief, best..."

I was diagnosed with DISH 4 years ago as an incident al finding while the Dr. was looking for something else. I believe I've had it since my mid twenties though. I caught some horrible virus and it kicked my immune system into overdrive and it started attacking multiple systems. I was first misdiagnosed with ankylosing spondylitis because I had HLA B27 gene along with positive ANA blood markers. Then in my 40's I was told I had a negative ANA. I still do. But they told me I did not have HLA B27. I just had a test that says I do. Multiple very high inflammation markers and have had wonky red blood cell tests for years. All my doctors have just blown off until I crossed some magical line and all the suddenly there was an emergency. My iron plummeted quickly so I had iron infusions. I got better, but it is falling again and they never found a cause. I don't know if it's related to DISH or not. I so glad I found this group! I am astonished at how many doctors have never heard of DISH. Anyone else have these symptoms?