← Return to DISH (diffuse idiopathic skeletal hyperostosis) or Forestier's
DiscussionDISH (diffuse idiopathic skeletal hyperostosis) or Forestier's
Spine Health | Last Active: Sep 13 4:44am | Replies (221)Comment receiving replies
Replies to "I have had DISH for approximately 10 years now aged 63, very medications provide relief, best..."
I was diagnosed with DISH 4 years ago as an incident al finding while the Dr. was looking for something else. I believe I've had it since my mid twenties though. I caught some horrible virus and it kicked my immune system into overdrive and it started attacking multiple systems. I was first misdiagnosed with ankylosing spondylitis because I had HLA B27 gene along with positive ANA blood markers. Then in my 40's I was told I had a negative ANA. I still do. But they told me I did not have HLA B27. I just had a test that says I do. Multiple very high inflammation markers and have had wonky red blood cell tests for years. All my doctors have just blown off until I crossed some magical line and all the suddenly there was an emergency. My iron plummeted quickly so I had iron infusions. I got better, but it is falling again and they never found a cause. I don't know if it's related to DISH or not. I so glad I found this group! I am astonished at how many doctors have never heard of DISH. Anyone else have these symptoms?