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Anyone have a subtotal or total colectomy with ileorectal anastomy?
Digestive Health | Last Active: Aug 10 9:49am | Replies (10)Comment receiving replies
Welcome @madso25. To help you connect with other members, I moved your post to this existing discussion:
- Anyone else have a subtotal or total colectomy with ileorectal anastomosis? https://connect.mayoclinic.org/discussion/subtotal-colectomy-wileorectal-anastomosis-support/
In this discussion, you'll meet @bluehedgehog and @annewithane. I'm also tagging @ellemorgan @nobletype @bermuda56 @bevjoy @grammam @rjmobe, who have experience with a total colectomy and ileorectal anastomosis.
I've also added the discussion to the Ostomy support group as well to bring in fellow ostomates https://connect.mayoclinic.org/group/ostomy/
I understand you have necrotizing enterocolitis (NEC) at birth, which necessitated the colectomy and ileorectal anastomosis, correct?
What foods work well for you? By less air, do you mean searching for foods that produce less gas?
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Hey! Thank you for the reply! Yes, so the NEC caused the reasoning for the ileorectal anastomosis. I am looking into getting a nutritionist to understand my body better but have had a hard time finding one that would recognize a case like this, but i will keep looking. Yes in saying less air, I mean foods that produce less gas. Thank you for connecting me with people of the same surgery, there aren't many, but I am glad to see some! Thanks!