Hello @ksocha91 and welcome to Mayo Connect. You are asking good questions, and I can certainly understand your concerns. While I've not had the same type of cancer you do, I have had a rare form of cancer of the upper digestive tract, and I do understand how you need to connect with others who are also following the same path. I looked on Mayo Clinic's website and found some information about LMS. Here is the link, https://www.mayoclinic.org/diseases-conditions/leiomyosarcoma/cdc-20387733

While we wait for others in the group to post with you about their experiences (like @nanee1 @smcquaig and @futureperfect). Please remember, though, that each person's cancer experience is different. It depends on the staging of the tumor, etc.

I see that you are meeting with an oncologist soon. Bring your list of questions with you. I look forward to hearing from you again. I hope that the appointment with the oncologist gives you some direction with the type of follow-up and/or treatment needed.

I look forward to hearing from you. Will you post again with any questions and also post after your oncologist appointment?