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Anyone have a subtotal or total colectomy with ileorectal anastomy?

Digestive Health | Last Active: Aug 10 9:49am | Replies (10)
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@madso25

Hello all!
I was born at 25 weeks (a premie) and had NEC in 2001. As a result, I had a total colectomy with ileorectal anastomosis. I am 22 now and was wondering if anyone else has had a similar situation or the same surgery. I am struggling to understand my body's reaction to different foods to help regulate my system to the best it can (less air). Does anyone have any experience with this surgery and can relate? I would love to just chat with someone so I feel less alone!

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Replies to "Hello all! I was born at 25 weeks (a premie) and had NEC in 2001. As..."
Colleen Young, Connect Director | @colleenyoung | Nov 2, 2023

Welcome @madso25. To help you connect with other members, I moved your post to this existing discussion:
- Anyone else have a subtotal or total colectomy with ileorectal anastomosis? https://connect.mayoclinic.org/discussion/subtotal-colectomy-wileorectal-anastomosis-support/

In this discussion, you'll meet @bluehedgehog and @annewithane. I'm also tagging @ellemorgan @nobletype @bermuda56 @bevjoy @grammam @rjmobe, who have experience with a total colectomy and ileorectal anastomosis.

I've also added the discussion to the Ostomy support group as well to bring in fellow ostomates https://connect.mayoclinic.org/group/ostomy/

I understand you have necrotizing enterocolitis (NEC) at birth, which necessitated the colectomy and ileorectal anastomosis, correct?

What foods work well for you? By less air, do you mean searching for foods that produce less gas?

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