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My results after 1 year of Evenity

Osteoporosis & Bone Health | Last Active: Apr 9 10:20am | Replies (51)

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@naturegirl5

I got my first Evenity injections on Monday, October 30. So it’s been two days. The injections were subcutaneous in the fleshy part of the back of each arm. I haven’t experienced any pain, fatigue, or headaches and frankly since I expected to experience something I’m rather surprised that I did not. The plan is for me to get a blood draw on a bimonthly basis, a few days before the injections. The blood draw is to check that my blood calcium levels remain in a normal range as Evenity draws calcium from the blood to direct to bone. I can get the blood draw in my home town but I have to travel about 2 hours from home for the injections. The infusion center where I went (Bellin Health in Wisconsin) was quite straightforward and easy for me to schedule with after they received the referral and prescription from my endocrinologist. Since Evenity is administered in a clinical setting my Medicare Part B and Supplemental Plan (Medigap) will cover the enormous cost of this medication.

I’ll update as I proceed. I am, of course, hoping to see increased bone density after the 12 months of Evenity injections and little to no adverse effects from the injections. After I complete the year on Evenity the plan is to move to another osteoporosis medication that will “lock in” the bone density.

According to my endocrinologist, since I had endometrial cancer and received radiation therapy some of the osteoporosis medications are contraindicated for me. That’s why he prescribed Evenity (I don’t have a history of cardiovascular disease or stroke) for these first 12 months.

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Replies to "I got my first Evenity injections on Monday, October 30. So it’s been two days. The..."

Helen,
I receive my 6th injections of Evenity tomorrow. I’ve been symptom free other than some fatigue the day after the injections. That was only after the first and second injections. I guess my body adjusted to the drug.
You are not kidding about the cost - I see it on my Medicare statement- $5,000+.
Best of success on your treatment journey.

Omg, I also had endometrial cancer with 10 1/2 weeks of radiation and resulting osteoporosis as well as malabsorption issues. I now have breast cancer and am trying to determine the best path of aromatase inhibitors (maybe none) and osteo meds. Can you please tell me what osteo meds are contraindicated by the prior endometrial cancer? Thank you so much!

I am halfway there. Just had my 6th round of injections and had to hop on a plane the day after. I don't get very dramatic side effects at all. Sometimes I might get a small rash which goes away quickly. My biggest concern is if I am getting enough or too much calcium. I think a blood draw is a good idea. One can get too much calcium as well as too little. I am trying to drink 12 ounces of milk everyday and eating cheese regularly. I had taken fosamax for years with no positive results. My spinal scores are very bad so this is my best chance to do something about my bone loss. I walk a couple of miles 5x a week and lift some light weights regularly. Fingers crossed this routine pays off for me. Medicare and my supplemental insurance cover the injections completely.